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Tenerife to Host the Final Conference of the BUR-EB Project

On October 7, 2025, Santa Cruz de Tenerife will host the Final Conference of the BUR-EB Project, an international initiative dedicated to estimating the socio-economic burden of Epidermolysis Bullosa (EB) in 7 EU countries (Spain, France, Germany, Italy, Hungary, Austria and Bulgaria). The conference will bring together researchers, healthcare professionals, and representatives of patient organizations (DEBRA) to present the main results …

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BUR-EB 2nd-year Meeting

The BUR-EB 2nd-year Meeting took place on last June 11th, 2024 at the Necker Enfants Malades Hospital in Paris, France. Consortium partners and DEBRAs from various countries, including DEBRA International, attended the meeting. The purpose of the BUR-EB 2nd year meeting was to present a comprehensive update on the project’s progress. The presentation provided a …

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