The BUR-EB 2nd-year Meeting took place on last June 11th, 2024 at the Necker Enfants Malades Hospital in Paris, France. Consortium partners and DEBRAs from various countries, including DEBRA International, attended the meeting. The purpose of the BUR-EB 2nd year meeting was to present a comprehensive update on the project’s progress. The presentation provided a …
The EJP RD JTC2021 Midterm Monitoring meeting took place in Bari (Italy) on the past May 29-30 2024. The convening of this Midterm Monitoring Meeting for projects funded under JTC2021 aimed to track progress and assess outcomes, drawing upon insights from both scientific and patient experts. Moreover, EJP RD endeavours to unite researchers from the …
BUR-EB´s kick-off meeting (KoM) took place online last March 7th, 2022. This event was the opportunity to officially present the project and its objectives, as well as to plan our further activities and start exchanging experiences and knowledge regarding the project´s development. The meeting brought together 20 participants, most of whom are members of the …