On October 8, SESCS/FIISC welcomed researcher Áron Hölgyesi, member of the Health Economics Research Center (HECON) at Óbuda University (Budapest, Hungary). During his visit, Dr. Hölgyesi gave a scientific talk presenting the main research lines of his center, focused on health economic evaluation and the measurement of...

The Final Conference of the European project “Changes in the Socio-economic Burden of Epidermolysis Bullosa in Europe” (BUR-EB), coordinated by Renata Linertová, was held on October 7th, 2025, in Santa Cruz de Tenerife, with the participation of representatives from all...

On October 7, 2025, Santa Cruz de Tenerife will host the Final Conference of the BUR-EB Project, an international initiative dedicated to estimating the socio-economic burden of Epidermolysis Bullosa (EB) in 7 EU countries (Spain, France, Germany, Italy, Hungary, Austria and Bulgaria). The conference...

The BUR-EB 2nd-year Meeting took place on last June 11th, 2024 at the Necker Enfants Malades Hospital in Paris, France. Consortium partners and DEBRAs from various countries, including DEBRA International, attended the meeting. The purpose of the BUR-EB 2nd year...

The EJP RD JTC2021 Midterm Monitoring meeting took place in Bari (Italy) on the past May 29-30 2024. The convening of this Midterm Monitoring Meeting for projects funded under JTC2021 aimed to track progress and assess outcomes, drawing upon insights...

BUR-EB´s kick-off meeting (KoM) took place online last March 7th, 2022. This event was the opportunity to officially present the project and its objectives, as well as to plan our further activities and start exchanging experiences and knowledge regarding the...